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 September 2004
Published by NAMI North Carolina
North Carolina’s Voice on Mental Illness

  Inside this Issue: 

Family-to-Family Regional Manager Position Available

NAMI-NC Annual Fund

Family-to-Family Volunteers Value Their Experience

Clippings, Board of Directors, Staff Contact Information

A Message from the President

Clippings Gets New Look

A Message from the Executive Director

NAMI North Carolina Welcomes New Bookkeeper/Executive Assistant

One Piece of the Reform Puzzle: The Olmstead Decision

Liability Limits Proposed for FDA-Approved Medical Devices and Medications

Mental Health Awareness Week

Young Families Program Update 2004-2005: Part One

Helpline is Here for North Carolina 

Family-to-Family: Training for NAMI Support Group Leaders

Consumer Corner: A Disease that gets no Chicken Pie

Affiliate News

Planned Giving and NAMI North Carolina: Building on Our Past, Supporting Our Future

NAMI Walks 2004: Final Report Development: Fundraisers and Gifts

Fall Regional Meetings

HELPLINE Information

NAMI North Carolina Mission Statement

 

Family-to-Family Regional Manager Position Available

Call the NAMI North Carolina office to receive a copy of the job description and an application for the position of Family-to-Family Regional Manager.  NAMI members who are Certified Family-to-Family Teachers with strong organizational skills are encouraged to apply.


NAMI-NC Annual Fund

  NAMI North Carolina appreciates the individuals who volunteer their time through Family-to-Family and other activities.  We also thank the many individuals who support us financially.  A letter from NAMI-NC will soon arrive announcing the beginning of the Annual Fund Drive. Thank you in advance for the many ways you support NAMI-NC.


Family-to-Family Volunteers Value Their Experience

  Research on volunteerism suggests that there’s an emotional connection to volunteering that can’t always be duplicating by writing a check.  NAMI North Carolina’s Family-to-Family Education Program offers volunteers the opportunity to gain new experiences and develop relationships while helping others.

Teachers say they receive a deep sense of satisfaction when teaching the Family-to-Family course.  There is immediate feedback from class participants who express appreciation for the work teachers do to provide this valuable experience for them.

Participant Comments

The comments made by Family-to-Family participants illustrate the information and emotional support the course provides.

“A life saver!  I have gained so much knowledge about mental illness and gained the confidence to help my son.  I am much more accepting, and now speak out on behalf of the mentally ill.”

"I had no idea what to expect.  I was very impressed, very comfortable, and wished I had attended the course years earlier.”

"This course has given me essential information to deal intelligently with our situation and has provided emotional support to give me strength.  I am not the same person."

 "This has been the most effective course, support, or informational class that I have attended. This class put everything together in a practical manner.”

 Family-to-Family Teacher Qualifications

Family-to-Family teachers are members of NAMI who have a relative with a mental illness, have received certification to teach the course, and have agreed to teach the course for their affiliate at least (but not limited to) two times.

  NAMI-NC is grateful to the committed teachers who work hard to offer the Family-to-Family course in their communities.  If you are interested in teaching the course in your community, the next teacher training session will be held October 22nd – 24th in New Bern.  Contact Phyllis Kennedy for more information.

 By Phyllis Kennedy, Director, Family-to -Family
 


 Clippings, Board of Directors, Staff Contact Information

  NAMI-NC Board of Directors

Beth Garriss Hardy, PhD, President
Frank Cleary, EdD, President Elect
Carol C. Matthieu, Vice President
Ed Masters, Secretary
Nancye Bryan, Treasurer
John L. Barber, JD
Antoinette Brey
Laura Coker
John Crowe, DMin
Ken Farrington 
Rebecca Faucette
Dean Fitzpatrick
Richard Greb
Larry Hagler, PhD
Kami Hardy, MSEd
Steve House
Floyd McCullouch, MAEd
Lenwood Simms
William Wesse

NAMI-NC Office Staff

Chris Aycock, MPA, Executive Director
Di Chen, MS, Bookkeeper/Executive Assistant
Gloria Harrison, Helpline Director
Linda Swann, Young Families Program Director
Phyllis Kennedy, Family-to-Family Director

NAMI North Carolina is pleased to accept submissions, although guaranteed publication requires prior approval. The articles published, whether written by staff or outside contributors, will need to be edited for length, style, clarity and content. Submissions can be made by e-mail to kalanimac@yahoo.com, or by fax or mail (see back of Clippings) to the NAMI-NC office.

  Clippings is edited by Kalani MacGregor, MPH. 

 Printing services are provided by Carter Printing.

 Most Clippings photos provided by David Bibb Photography, www.DavidBibb.com.
 


A Message from the President

To Members of NAMI North Carolina:

As we continue to celebrate our 20th year of advocacy, education and support on behalf of people living with brain disorders, NAMI North Carolina is working hard to reconnect with you, our grassroots. The results of the recent Membership Survey tell us that there are issues that concern us all, as individuals and as an organization.  State Mental Health Reform continues to offer challenges and opportunities to all of us to get involved and make a difference.  How do we organize and equip ourselves to address those issues, overcome those challenges and embrace those opportunities in the most effective way possible?  We work together.  We generate dialog among consumers, family members, professionals and community agencies to make sure the NAMI voice is heard as decisions are being made. 

One of the ways we work together is to build strong partnerships.  A major goal for NAMI-NC is to strengthen partnerships between affiliates and the state office, and between and among neighboring affiliates in each region.  To that end, we look forward to your involvement in the Fall Regional Meeting that is taking place near you in October.  Planning for these meetings is in its final stages, and I urge each of you to attend the meeting in your region.  These meetings will bring important NAMI program information to you as well as give you opportunities to tell us what you need to be a strong affiliate.  Meet and greet neighboring affiliates and learn from each other as you identify your needs and share your successes.  This is your chance to tell us what you need most to strengthen your affiliate so that we are indeed the North Carolina’s Voice on Mental Illness.

  See you in October!

-Beth Garriss Hardy, PhD
President, NAMI North Carolina Board of Directors
 


 Clippings Gets a New Look

You may have noticed that the last issue of Clippings (July 2004, available online at www.naminc.org) had a new look to it, with changes in the layout and formatting.  Clippings now has regular sections that follow NAMI- NC’s mission of advocacy, education, and support; a shorter and sleeker look, with a return to the use of NAMI-NC’s color scheme; and the use of more typical newsletter articles.  Remaining the same is NAMI-NC’s desire to make Clippings a collaborative newsletter, with contributions by NAMI-NC members and supporters, the staff and board of NAMI-NC, and mental health advocates and experts. 

NAMI North Carolina recently hired Kalani MacGregor, MPH, as the new editor of Clippings.    Kalani is a freelance writer whose publications have appeared in local and national magazines.  She also teaches health at Wake Technical Community College in Raleigh and is an active volunteer with Planned Parenthood and, formerly, NAMI-NC. In fact, Kalani had been volunteering with NAMI-NC for only a few weeks when staffing changes resulted in the need for a new editor.

If you are interested in writing an article or have suggestions for future articles, please contact us.  Submissions to Consumer Corner are especially needed.

For submissions to Clippings, contact Kalani MacGregor, MPH, Editor of Clippings, at kalanimac@yahoo.com.
 


A Message from the Executive Director

Dear Members, Friends and Supporters of NAMI North Carolina:

Many of you will participate in a candlelight vigil during Mental Illness Awareness Week. This is an effective way to bring attention to the issues surrounding mental illness.  You, as a person with mental illness, a family member, a service provider, or a funder, will bring light to your community.

NAMI North Carolina is committed to helping people in their recovery from the brain disorder of mental illness.  By supporting the growth and development of NAMI-NC affiliates, we hope to reach even more North Carolinians living with mental illness.  I recently started a regular email service called “Affiliates in Action” to update and assist local affiliates and to improve communication between NAMI-NC and local affiliates. This email is open to everyone. Please contact me if you would like to be included on the listserv.

NAMI-NC will also be facilitating Fall Regional Meetings across the state.  The Fall Regional Meetings are on the following dates: October 9 in Wilson, October 16 in Asheville, and October 30 in Greensboro. During the Fall Regional Meetings, we hope to provide information and support that will help affiliates in their current and future endeavors.  The meetings will also provide networking opportunities for attendees.

Another way NAMI North Carolina wants to support you is by promoting useful programs and services, such as Family to Family, Young Families, and Helpline.  Currently, we are working to build our consumer council and strengthen statewide consumer programs and initiatives.  The development of these programs and initiatives will strengthen our current advocacy efforts.

You are the candle in the candlelight vigil. You provide the support, education and advocacy needed to improve the lives of people with mental illnesses. Thank you,

-Chris Aycock, MPA
Executive Director, NAMI North Carolina

 


NAMI North Carolina Welcomes New Bookkeeper/Executive Assistant

NAMI North Carolina welcomes Di Chen, MS, the new Bookkeeper/Executive Assistant for NAMI-NC.  Di Chen reported to work on July 21, and has been busy since that time learning about her multi-faceted position. The unique job combines the skills needed for bookkeeping, administration, marketing, fundraising, accounting, and office management.

  Di brings a wealth of job experience and high-quality education to this position.  She has a BS in Materials Engineering from Northeast University in Shenyang, China and an MS in Accounting and Information Systems from Virginia Polytechnic Institute and State University in Blacksburg, VA.  She previously worked as an accounting assistant and as the marketing manager of a software company.  

Originally from China, Di Chen came to the United States with her husband to attend graduate school.  Now that Di has completed her graduate degree, she is interested in putting her education to work.  “ I like using my major. The accounting part is exciting,” says Di. 

In addition to developing and managing the budgeting and accounting systems, Di Chen’s responsibilities include supporting fundraising activities, managing the office, and providing executive assistance to Chris Aycock, MPA, Executive Director.  Di believes that the wide range of responsibilities the position requires will allow her many opportunities to learn and grow.

In her spare time, Di Chen enjoys going out to eat with her husband at restaurants like Macaroni Grill and Pizzeria Uno.  She also likes going to the movies, with one of her all-time favorite movies being “Shawshank Redemption.”  

By Kalani MacGregor, MPH, Editor, Clippings
 


One Piece of the Reform Puzzle: The Olmstead Decision

In-patient hospital beds are currently slated to be cut drastically throughout the state of North Carolina. One reason for this is the Olmstead Decision. In July 1999, the Supreme Court issued the Olmstead v. L. C. decision. The decision challenged federal, state, and local governments to develop cost-effective community services for individuals with disabilities. The Olmstead decision interpreted Title II of the Americans with Disabilities Act (ADA) to mean that people suffering disabilities should be provided services in the most integrated, community-based setting possible given their needs.

The Governor’s Advocacy Council for Persons with Disabilities (GACPD) explains the Olmstead Decision as follows:  “The Americans with Disabilities Act says that persons with disabilities should not be segregated into institutions.  It is against the law to make people stay in an institution if they do not want to be there and their treatment team agrees that they are able to live in the community.”  The GACPD goes on to say, ‘If you are living in an institution and want to live out in the community, you can ask to move.  If you do not need to be in an institution, you should be allowed to move.  There should be appropriate services and supports in the community to meet your needs, so that you can live there if you want to.”  The North Carolina State Plan calls for the development of local resources and services to support individuals who wish to live in integrated community settings.

NAMI North Carolina supports citizens being served in less restrictive, community-based settings.   However, there are members and friends of NAMI-NC who are concerned about the possibility of lack of care and homelessness if hospital beds are eliminated before the implementation of adequate community supports.   NAMI North Carolina members statewide are asking that local services be in place to handle persons with mental illness before the further elimination of hospital beds.

By Gloria Harrison, Director, Helpline
 


 Liability Limits Proposed for FDA-Approved Medical Devices and Medications

  he federal government has been attempting to block lawsuits by individuals and family members suing for damages due to alleged injuries and deaths from unsafe medical products or medications.  The current administration says that financial damages should not be allowed because the Federal Drug Administration (FDA) has approved the products/medications. The plaintiffs believe that they should be allowed to sue manufacturers for damages over faulty medical products and medications, regardless of FDA approval.

Previously, the FDA set minimum safety standards for medical devises and medications, but states could provide additional consumer protections.  The federal government now wants a clear policy that consumers cannot recover damages from injuries and deaths due to FDA approved medical devices and medications, regardless of state laws requiring higher regulatory standards.

In the July 25, 2004 issue of the Raleigh News and Obeserver (Nation, Page 4a), Rep.Maurice Hinchey, a New York Democrat, stated that the current federal administration had “taken the FDA in a radical new direction, seeking to protect drug companies instead of the public.”

In the same N & O article, Jay P. Lefkowitz, the former director of the Domestic Policy Council under President Bush stated that the change in the FDA litigation strategy showed “good health policy and good tort reform.”  Other proponents of the change in federal policy agree with Lefkowitz, saying that limiting medical manufacturer liability actually helps consumers because the threat of lawsuits can cause companies to withdraw potentially beneficial medical products from the market.

Recent state lawsuits indicate that the change in federal policy may be impacting state legal decisions. A Pennsylvania appeals court threw out a lawsuit from the widow of a man who died from a defective heart pump because the pump was produced according to FDA specifications.

The change in the federal policy could also restrict lawsuits from consumers injured by medications. Kimberley K. Witczak, whose husband committed suicide while on the antidepressant Zoloft, is suing Pfizer.  In the N&O article, she stated, “I do not believe in frivolous lawsuits.  But it’s ridiculous that the government is filing legal briefs on the side of drug companies when it’s supposed to be protecting the public.  My husband would be alive today if he had received adequate warnings about the risk of self-harm.”

The changing federal policy could curtail the rights of North Carolina residents to sue for damages if FDA-approved medical devices or medications injure them.

 By Kalani MacGregor, MPH, Editor, Clippings
 


 Mental Health Awareness Week

Don’t forget Mental Health Awareness Week, October 3-9.  This is your chance to advocate for those who suffer from mental illness.  Call your local NAMI-NC affiliate to find out about advocacy events in your area.  Links to NAMI North Carolina affiliates are available on NAMI-NC’s website at www.naminc.org. Don’t forget Mental Health Awareness Week, October 3-9.  This is your chance to advocate for those who suffer from mental illness.  Call your local NAMI-NC affiliate to find out about advocacy events in your area.  Links to NAMI North Carolina affiliates are available on NAMI-NC’s website at www.naminc.org.
 


Young Families Program Update 2004-2005:Part   One

 

NAMI North Carolina Young Families Program is looking forward to another busy year. I want to let you know what our program goals are for this fiscal year.  As you may know, the funding for your Young Families Program is provided by a federal block grant through the Department of Health and Human Services (DHHS). We have specific expectations from DHHS about what we are expected to accomplish.

My primary goal as your program director is to reach 1280 child-serving agency personnel (largely educators) through our workshops on “Understanding Serious Emotional Disorders in Children and Adolescents.” I am pleased to be getting calls from groups locally and across the state requesting this workshop.

To educate agency personnel, I also present at statewide conferences and at schools throughout the state. Several individuals have generously assisted me in this effort:  Sue Bennett (NAMI Forsyth), Chary Sundstrom (NAMI Wake), and BethAnn and Colleen Russell (NAMI Moore). Please contact me by email (lswann@naminc.org) or call the office if you are interested in scheduling a workshop in your area.

A related goal is to educate parents of children with brain disorders. This year we expect to reach 150 new families through workshops designed specifically for them and through support groups. Let me know if you would like to sponsor a workshop. Please refer new young family members to the state office for information and assistance.

  First of a two-part series.

 By Linda Swann, Director, Young Families Program
 


Helpline is Here for North Carolina                                       

NAMI North Carolina Helpline has provided support to consumers and families statewide.  Family members, consumers and professionals call about problems, questions, and just to talk.  College and high school students call, often about a “paper”, affording a precious opportunity to send and share accurate and measured information about mental illness.

The range of issues is extraordinary.  They include concerns about symptoms of the illness, grievance procedures with county facilities, vocational rehabilitation, involuntary commitment, social security disability  (SSI/SSDI), insurance issues, Individual Education Plans (IEPs), services, guardianship and advocacy.  A common request is also peer support, with consumers and family members longing to talk to others who share their experiences. 

The Helpline is a resource across the state.  Last year, we spoke to almost 2,000 callers, averaging 15 minutes a call. Over 1,000 pieces of literature have been sent out in response to calls. But we have only begun to reach our potential.  Give us a call.  If we can’t help, we will find someone who can.

By Gloria Harrison, Director, Helpline
 


 Family-to-Family: Training for NAMI-NC Support Group Leaders      

On January 22nd – 23rd, NAMI North Carolina will sponsor training for local affiliate support group leaders in Greensboro.  NAMI Guilford members, Frank and Pat Cleary, are Certified NAMI Support Group Facilitator Trainers, and will conduct the two-day training.  The training session, at no cost to the participants, will be funded by a donation from the Lynnette Martin Memorial Fund. The space is limited, so affiliates are encouraged to identify candidates as soon as possible. 

The training is designed to furnish the fundamental structures and group processes so facilitators can run meetings that are both empathetic and upbeat.  Dr. Joyce Burland, NAMI National’s Education Program Director, tells us: “As one of NAMI’s central missions, support groups are the backbone of grassroots outreach to family caregivers coping with the stresses of serious and persistent brain disorders.”

  Dr. Burland recognizes input from NAMI North Carolinians in the development of the Support Group Model. Contributing were Sarah Faber, a mental health professional; Beth Greb, former NAMI North Carolina Affiliate Relations Director; and Shirley Strobel, a former NAMI North Carolina State President.

 If you are interested in attending the January support group training or the many Family-to-Family classes scheduled statewide this Fall, contact Phyllis Kennedy, NAMI-NC Family-to-Family Director, at 910-255-0199.

By Phyllis Kennedy, Director, Family-to-Family
 


Consumer Corner: A Disease that gets no Chicken Pie

This article originally appeared in the October 6, 2003 issue of the Winston-Salem (NC) Journal.

  I wrote a bit of bad verse that sums up my observations about the difference between having cancer and bipolar disorder. Perhaps it will strike a chord with many of those affected:

Two killers live in me.
Both destroy my bod.
One the world will help me fight,
The other, only God.

Last spring I was diagnosed with leukemia, a cancer of the blood. Fortunately the type (CLL) is one of the 'best cancers to have' - slow-growing and treatable. Currently it's incurable, though, and its impact on life expectancy gets one's attention. I've been struck by the similarity of this disease and another with which I was diagnosed six years ago. Bipolar disorder (also called manic depression) is a brain disease that can cause wild mood swings. Both diseases are treatable, but both are incurable and deadly if left untreated (of people who attempt suicide, those who have bipolar disorder are most likely to take their own lives). That's where the similarities end though, primarily because of stigma.

When I was child in the 1950s, there was a terrible stigma associated with cancer. It was discussed in hushed tones as if it were communicable or the result of sin.  The stigma has largely been eradicated in the United States. We know better.

In my own experience, I was able to share with many friends, co-workers and church members the news about the leukemia. My family and I received wonderful support - often from surprising sources - as the news hopped around the e-mails. There were cards, prayers offered, contacts from others with the disease, and even a meal of that local symbol of love and caring, the Moravian chicken pie (baked, interestingly enough, by a Brazilian American friend).

 How different things were when I was diagnosed with bipolar disorder. There was no chicken pie. I felt no shame or discomfort about the diagnosis, but hardly anyone among my family and friends knew how to react to the news that I might be 'crazy.' I was disoriented for a year as I tried to understand what happened and worked with my doctor to find the proper medications. Since then, I've had no further problems with the disease. The mood stabilizer and the antidepressant I take have thus far kept the symptoms in check.

Two years ago we started a support ministry at First Presbyterian Church (Winston-Salem) for people affected with the disorder. We have two groups - one for loved ones and one for folks with the illness. Most of the people to whom we minister suffer substantially more than I did. As if the disorientation and danger of a mood disorder are not enough, they suffer real threats of social isolation and the loss of job opportunities, marriages, children, friendships and faith.

The number of people in the United States whom experience a brain-disorder illness is staggering - 54 million, or 19 percent of the population. Clinical depression and anxiety disorders are the largest categories of illness. Bipolar disorder affects at least 1.2 percent of the adult population (some experts estimate three times as many). In Forsyth County, that equals about 2,400 adults. Estimates are that 60 percent of those with bipolar illness become addicted to alcohol or drugs as they attempt to dull the pain by self-medicating.

Though prescription medications and therapy are effective for many bipolar cases, most ill people go untreated because of stigma, misinformation and failures of insurance plans to provide adequate coverage for diseases of the brain. Organizations such as the Mental Health Association and the National Alliance for the Mentally Ill (NAMI) work valiantly to overcome these problems, but funds and volunteer leaders are scarce.

My particular calling is to engage churches and other faith communities in the fight against stigma. We are seeing remarkable recoveries in families as others who have been broken by these illnesses - yet strengthened by their trials - come alongside them with encouragement and prayer.

There are few churches I know of that would allow stigma to keep them from ministering to people who have cancer. Fifty years ago this was not the case. My dream is that in less than a decade, nearly all churches will minister to those with brain diseases and other mental illnesses.

The enemy's weapon is stigma. Its fuels are fear and human pride. At stake are the hearts, minds, bodies and souls of our friends and loved ones. Perhaps even our own.

It's time for the children of God to join him in the fight. 

By Bob Mills 

Bob Mills reports that through August, 2004, 425 people have attended the support  ministry for people affected with bipolar illness. Average attendance at his bi-weekly meetings is about 35. If you would like information about the ministry, contact the author  at millsrd@wfu.edu.
 


Affiliate News

NAMI Wilmington will be holding its annual Legislative Breakfast in October.  The members of NAMI Wilmington most long-term and faithful advocates and they communicate with their legislators often.  Senator Ballantine is a frequent attendee, as well as Representative Ed Nye. Speaking of Legislative Breakfasts, NAMI Orange held theirs on May 1.  A crowd of 100 people came to listen and speak with US Representative David Price, NC Representative Verla Insko, and Keynote speaker Lanier Cansler, Deputy Secretary of the NC Department of Health and Human Services.  Thanks to all of NAMI Orange folks for keeping the NAMI name alive and making sure that legislators remember people with mental illness.

A record number of NAMI Wake County members have signed up for the NC State football concession stand fund-raiser.  Working with The Countryside Garden Club, NAMI Wake members work to raise money for their affiliate and its goals.

  By Gloria Harrison, Director, Helpline
 


 Planned Giving and NAMI North Carolina: Building on Our Past, Supporting Our Future

NAMI North Carolina began in 1984 as a small group of dedicated family members.  In 20 years, it has become a statewide organization with 31 affiliates working in communities large and small, highly respected for its programs and for its opinions on the complex issues surrounding mental illness.  As we begin the next 20 years, looking for ways to better serve our members, we are also looking for ways to make NAMI North Carolina more financially secure.

A planned gift to NAMI-NC can help ensure that we will be there in the future for your family, for other families who are members, and for families who are just beginning to find out what a lifeline NAMI –NC can be.

Planned Giving is a component of Estate Planning.  It allows you to plan for the future of NAMI-NC just as you plan for the future of your family.  Estates large and small need planning so that your assets will benefit those you choose.  Described below are some common planned giving options that can accomplish multiple goals.

 

·      Make a tax-deductible cash gift to NAMI-NC, reducing the amount of assets subject to future tax liability for a beneficiary.

·      Now or in the future, give a gift of appreciated stocks, bonds, or mutual fund shares.  Your charitable deduction equals the current market value of the asset and you avoid capital gains taxes for shares held long-term.

·      Make an outright bequest to NAMI-NC in your will.

·      If you have a revocable living trust, you can designate NAMI-NC as a beneficiary in the final distribution of the trust assets.  This residuary bequest designates beneficiaries for any assets that remain in the trust after death.

·      Establish charitable remainders trust for a specific term of years to benefit family members with income for that term, with the remaining assets distributed to NAMI -NC.

·      Set up a charitable lead trust, to provide NAMI–NC with income for a specific term of years, distributing the remaining assets to other beneficiaries.

·      Designate NAMI-NC as one of the beneficiaries of retirement plan benefits, especially if other beneficiaries will incur large tax liabilities from lump sum payments.

·      Make NAMI-NC the beneficiary on any life insurance policy or annuity.

·      Contribute money to a charitable endowment fund, or donor-advised fund, at one of the major mutual fund companies.  Contributions are invested in a fund managed by the company, which then makes donations to qualified charities that you designate from time to time.

Contributions to NAMI North Carolina help us continue the programs that have been so meaningful for so many families struggling with mental illness.   Talk with an estate planning or elder law attorney, financial planner, or one of the major mutual fund companies about Planned Giving options you might consider to help NAMI-NC “Build on Our Past and Support Our Future.”

This article is not intended to replace professional advice on estate planning.

 C arol C. Matthieu, Vice President, NAMI North Carolina Board of Directors
 


NAMI Walks 2004: Final Report Development: Fundraisers and Gifts

Thanks to the effort and hard work of many members, the first NAMIWalks in North Carolina was a success!  NAMI Charlotte and NAMI-NC co-hosted this nationwide event to raise money and awareness about mental illness.  NAMI Charlotte acquired sponsors and Charlotte area team captains, and managed the event details leading up to the day of the Walk.  

NAMI North Carolina increased affiliate involvement to 14 affiliates all over the state and managed the accounting of the revenues in the weeks following the Walk.  Total Walk revenues were $38,015.  There were 41 teams that raised $22,794. Non-team donations from individuals totaled another $3721, and sponsors (AstraZeneca, Microsoft, Person Centered Partnership, Cooper Riis, Inner Vision, Inc, and Carmel Family Pharmacy) contributed $11,500.  Special thanks goes to our major sponsor, Astra Zeneca, for their $7500 contribution

NAMI Charlotte grossed the most individual and team contributions, $11,310.  After expenses were paid, 14 affiliates shared a total of  $15,622 and NAMI NC received $15,818.  The top ten teams, captains, and affiliates were:

Caramore Community, Whitney Vaughan, NAMI Orange County: $2988
Wesse Team, Bill Wesse, NAMI Charlotte: $2540
Kenneth Garriss Family Team, Beth Hardy, NAMI Rockingham County and NAMI NC: $2320
Hope Now!, Leslie Vander Baan, NAMI Charlotte: $1674
NAMI Charlotte, Walter and Gisela Kluge: $1105
Union House, Gaynell Keith, NAMI Union County: $1061
Sarah Cameron’s Team, Sarah Cameron, NAMI Durham: $1035
Ken Farrington Team, Ken Farrington, NAMI Forsyth County and NAMI NC: $1025
NAMI Cabarrus, Ted Thomas: $953
Betty Talley’s Team, Betty Talley, NAMI Cabarrus County: $960

  Start thinking now about teams for 2005!  NAMIWalks is the perfect event to raise money and increase our visibility.  Please call Chris Aycock at NAMI NC for information as we start planning for 2005.

 By Carol C. Matthieu, Vice President, NAMI North Carolina Board of Directors
 


Fall Regional Meetings

Beginning on October 9th, NAMI North Carolina will hold Fall Regional Meetings in three locations throughout the state of North Carolina.  The theme of the Fall Regional meetings is: “Equipping and Supporting Consumers and Families.”  Through these meetings, NAMI-NC hopes to strengthen partnerships between affiliates and the state office, and to give members of affiliates the opportunities to network and get to know one another.

During the Fall Regional Meetings, the members of NAMI-NC affiliates will be able to discuss their most salient issues with other affiliates and staff/board members of NAMI-NC.  The Fall Regional Meetings will provide a forum where affiliates can learn from one another about successes and challenges faced by other affiliates.

NAMI-NC also wants to learn how to better support affiliate efforts and growth.  Says Beth Garriss Hardy, PhD, President of NAMI North Carolina Board of Directors, in her opening letter (Page 1): “This is your chance to tell us what you need most to strengthen your affiliate so that we are indeed North Carolina’s Voice on Mental Illness.”

Fall Regional Meetings will be held in the following three locations statewide: Western Region, Asheville (hosted by NAMI Asheville on October 16th); Central Region, Greensboro (hosted by NAMI Guilford on October 30); and Eastern Region, Wilson (hosted by NAMI Wilson on October 9). 

For more information about times, locations, and directions, click here.

By Kalani MacGregor, MPH, Editor, Clippings
 


 NAMI North Carolina’s Helpline

  800-451-9682 (NC only)

When you need:
*Support
*Information
*Referral
*Someone to listen
*Someone to advocate for you